Tuesday 29 April 2014

First Note to feature on LPforLB!!

First Note is pleased to announce that we will be contributing our single 'See ME!' to the wonderful cause - JusticeForLB! 


We have been approached by Sara, LB's mum, to feature on the CD, LPforLB. The CD is to feature some of LB's favourite songs as well as First Note's track 'See ME! (Not My Disability)'. First Note recorded their first track last summer and released it on iTunes with the help of local songer/songwriter and mixing master Jadon Fell. This achievement meant so much to the group and have now decided to hand the "See ME!" baton over to raising money for the JusticeForLB cause. 

The message in the song speaks for itself - people asking you to see them for who they are rather than for what their disability, or ability for that matter, is. The message aims to allow people to see that as a society we label people and put them into boxes when actually we are all the same. 

Please watch this space. The LPforLB will be out soon and available for purchase on Amazon. 

YouTube Video: About... First Note

Friday 11 April 2014

Justice for LB - Day 26 - First Note's Action


Justice For LB

 DAY  26  of  #107days  of  ACTION 

'Justice for LB' is a nationwide campaign that looks to raise awareness to the tragic death of Connor Sparrowhawk on July 4th 2013. This case has raised an enormous amount of concern about the lack of health and social care support and provision for young learning disabled people across England. The results of a recent report explores how the NHS have failed (and continue to fail) to offer appropriate support and "provide even basic care" to people with a learning disability.

This is LB, a young Autistic 'dude' who drowned at NHS unit

Connor Sparrowhawk, aka LB (laughing boy), died under the care of the staff at an NHS treatment unit. It has been reported that the unit in which he was held had made many failings whilst caring for him and his mother, Sara, is now looking for answers. 

#JusticeforLB's campaign has hit the "big-time" with individuals, groups and organisations coming together to join the fight. LB was in the NHS treatment unit for 107 days... Therefore, the campaign '#107Days of Action' has come about. 

To follow the actions, please go to: www.twitter.com/JusticeForLB


 LB's family need answers and WE need to help and make sure this kind of malpractice never happens again. Not only are answer needed, but it takes a long time and is going to cost thousands of pounds in legal costs.

 JOIN THE FIGHT! 

First Note have been touched by LB's compelling story and have therefore decided to get involved by dedicating a song in support of the #Justice4LB campaign and in loving memory of LB.

For the full story and some inspirational blogs, please use these links - share, like and help us spread the word!

 We're doing our bit... now you do yours

Youtube Video: BBC Radio 4's interview with Sara, LB's Mother

LB's Fighting Fund: sarasiobhan.wordpress.com/about/

LB's mum's Blog: mydaftlife.wordpress.com

Facebook: www.facebook.com/JusticeforLB

Twitter: www.twitter.com/JusticeforLB


Also, GeorgeBlogs explains the story a lot better than I ever could, click on the link below to learn more... 

http://georgeblogs.wordpress.com/2014/02/11/my-50-thousandth-tweet-justiceforlb-lbbus/


 Day 26  Monday 14th 2014 

 First Note's Action 


About First Note

For those that don't already know, First Note is an all-ability community music group based in Luton, Bedfordshire and work with many people who have varying abilities and disabilities. One thing we stand for is allowing all members of our community to have a voice. This empowerment is priceless. Through music we can unite people because, it goes without saying... music is power! 

So please, enjoy our video in loving memory of LB. 



Music allows us to come together in hard times and we hope in making this that we can raise much needed awareness to this campaign and all other kinds of malpractice across the country. 


About the Song

This song was written because of Luton's diverse community. It combines English, Urdu, Hindi and Punjabi and is about joining together in celebration. Whether it's right or wrong, we tend to judge each other on whether we're able-bodied, disabled, black, white or purple! When really, we all share the same existence and experiences that life has to offer. We have one great thing in common.. We are all human. So whilst LB's story is very tragic and has touched the hearts of many people, perhaps something positive can come from this? Maybe we can give some inspiration to allow voices to be heard? Maybe society can grow and change...? One voice cannot be heard.... but maybe many voices can!!




 Points  for  Discussion 

Re-educating Our Society

One thing in particular that really rang true with me is what Sara, LB's mother, so poignantly pointed out in her interview on BBC Radio 4... She comments on how disabled people are seen to have less of a life and therefore its assumed that they can never aspire to anything else beyond their disability. I experience this on a weekly basis and it's very sad to watch. But we cannot change this entire out-dated view single-handedly. First Note think that as a society it is important that we change people's outlook and re-educate their perception of disabled people. We have a responsibility to offer every opportunity for disabled people to be heard and teach them how to use their voices.

In my experience, it's all very well giving disabled people a voice but after years of not being asked to use it, they haven't a clue what they want. In most cases they've always been told what they need. And whilst its difficult to maintain this "new" attitude due to an inconsistent approach throughout a vast range of services in any one persons life, the quandary that springs to mind is that in order to be treated like an adult they should be more independent and take decisions in life. However someone with an inability to understand the responsibilities that comes with that may find it very difficult. We can help them, but my question is - can they handle that responsibility? Every person is different and that's whats makes this so hard. It's a debate that I could go on about forever - and that's only scratching the surface.

The great thing about First Note is that we have enabled disabled people, we've given them a voice and sparked a flame inside of them. But going out into the community, how is it used? I don't know if it is for the good or if it will provoke trouble for some? It doesn't take much to be misunderstood. What helps First Note is that we are not just for disabled people. We have many different members from all corners of the community - that is inclusion right there. We are the lucky ones - we can see beyond the social barriers...

What's sad is that some members of First Note - grown adults - have never been treated like... well.... adults! So if we continue to keep people in a disabled role then they will never grow and get on in the wider community. If we wrap them up in this "disabled/health care world" and that's all they ever know then we will be forever walking in circles and never evolve. We need to allow people to see disabled people as people, not stare at them or pity them... but realise that they have a life; they have likes, hates, loves, arguments, interests. Sometimes I feel like people look at my good friends as if they were aliens from another planet.... Being part of a community is that we embrace everyone's uniqueness. That's what I love about First Note, it's like a family. In the same breath I'll also tell you that we argue and annoy each other just like a family would too. But I don't feel bad because they're disabled... I think "You're an adult, this is real life...". If we treat disabled people like children then we can't expect society to not treat them like children. 




Our Local NHS


During a discussion of LB's story, the group raised a suggestion for future practice so we can do as much as we can to do better job in safeguarding ourselves. 

To be honest, we're not so sure how the systems in other hospitals work, but the Luton & Dunstable Hospital have two specialist nurses that solely dedicate their services to patients with learning disabilities. Yes, it may not be a specialist unit, but they are specialists nevertheless. These specialists are on hand to explain difficult things to patients and act as an advocate between general staff and patients. Is this available everywhere because if not, it should be....?

Also, maybe we can educate our sons and daughters that if they have a disability or medical needs, then they express it at every opportunity possible so hospital staff are aware of the bigger picture and can take action to avoid mishaps. Communication and education are points to be developed and moved forward, not only on a local scale, but on a national one. We need to be on the same page!


Written by Teela Hughes on behalf of First Note, Luton

p.s. some views are my own! ;)


www.music24.org.uk/first-note.php
www.facebook.com/FirstNoteLuton
www.twitter.com/FirstNoteLuton





Wednesday 26 February 2014

First Note's track - 'See ME!' released on iTunes

A Chance to Shine: Krishan laying down some vocals at Diverse FM Studio

The Superstars of Luton!

In 2013, 1st Note recorded their track with local musician and former FN member, Jadon Fell, at the Diverse FM studio. The experience proved to be something fresh and exciting for the group. In addition to this, Jadon mixed and mastered the track and got it released on iTunes! Wowsers!


Not only do First Note write their own songs... they record them now too! An unforgettable experience was lived by all and this was all thanks to Diverse FM for the use of their studio and Local Artist, Mr Jadon Fell, for editing, mixing and mastering the track - and in essence making this whole experience possible! We launched our track at LBC's 'Tea in the Park' at Stockwood Park in Luton last August. This tied in perfectly with a performance highlight made by First Note for the festive celebrations in aid of Learning Disability Week. Our famous lyrics "See ME, Not My Disability" was also adopted by the whole operation, across both Luton & Bedfordshire. A big thanks is also due to Luton Borough Council, SEPT and the Health Facilitation Service for their contributions towards the production of the CD's. 

If you would like to download our track, please Click Here!



To learn more about people living in Luton with Learning Disabilities, please Click Here

or copy & paste this link:

http://www.luton.gov.uk/Health_and_social_care/Lists/LutonDocuments/PDF/we%20live%20in%20Luton%20Too.PDF

FN's Studio Fun @ Diverse FM!










For more info on our wonderful helping hands follow the links:


Monday 24 February 2014

In the beginning there was music!

Hi, I'm writing on behalf of First Note, an all-ability community music group based in Luton, Bedfordshire, UK. It's always hard to know how to start these things so I have to tell it from the very beginning... It may not be wise to suggest I am the one sole voice of the group, therefore I'm obligated to tell you that some opinions are my own. Nevertheless, I am very pleased to be able to tell this rather lovely story and I hope you enjoy reading it.




In the Beginning


In January 2012 First Note was born. Although we were unaware of it at the time, this really was the beginning of something truly amazing. A safe haven for all members of the Luton community to come together was created... And one passion was at the forefront and firmly on the agenda - to make lots of music!

There was a clear need for something like this in Luton. I was already working with a group of individual's at Chaul End Community Centre out of Day Care Service hours and in my own time. I controversially named the music project 'Teela & The Misfits' and it was thought of by the members as quite amusing. This group had already been running for 3-4 months and was working with people who suffered mainly with some form of physical disability.

Then I met Graeme Davis, a Music Therapist working with Learning Disability for SEPT. Graeme had approached Luton Borough Council (LBC) because he too saw a clear need for an ongoing music group that was accessible to the residents of Luton. Graeme's experience had taught him that no matter how someone's mental health may be deemed as 'good', it's no use if their social life is completely dysfunctional. For him, as a Music Therapist, he would be referred a number of people that would make great progress in their one-to-one sessions with him, be it behavioral, issues around confidence or matters lying deeper than that, he found that if there's nothing beyond that for people to move on towards, then they'd stay stuck in the health care cycle longer than they needed to be than if that service was available to them.

With that in mind, a meeting was set up with myself, Graeme and Tom Laurence, a Community Skills Officer for New Horizons, LBC who is also a Nothern Soul DJ. The ingredients were now in place to start something special!

We had a initial meeting at Chaul End Centre with the "Misfits", Graeme, Tom and I and the formation of a Community Music group was discussed.

Moving On - Finding a Venue


It's impossible to be able to remember entirely all the nitty-gritty info and happenings from the early days.... it was over two years ago! BUT, it was agreed upon by the group that it should take place outside of a community centre or health care setting. The venue we decided to use was The Hat Factory in Luton, a centrally located venue that offered creative spaces at a really competitive rate. It was a no-brainer. 

This made sense to us all and it was easily accessible for everybody.... but something became a lot more evident later on as to why it was so important to use a mainstream venue.... - It offered an opportunity for members to have independence within the wider community. 

Personally, I don't think it's considered "healthy" for people who are in the health and social care system to only have a world that evolves around that way of day care life... To not have any interaction with the wider community or merely being taken on the odd trip to the seaside or to swimming once a week! That doesn't indicate integration to me and while this may be alright for some, we should not assume that is it okay for the majority of people accessing health and social care services. 

The difference with First Note is that their members have an opportunity to gain some independence in their life! They could be travel trained and travel on a bus on their own, ask a family member for a lift, travel with a friend... anything! As long as it didn't involve the ongoing daily bus routine they're faced with when attending Day Services. 

Diversity


First Note see's members come from all over the Luton community. Some that access health and social care services, some that don't. Some disabled people, some able bodied people.... You name, we have it! 

What we pride ourselves in and what makes us stand out from the crowd (and for the right reasons!) is that we don't segregate by age, sex, ability, ethnic origin or religious beliefs. We believe that a community group should do 'exactly what it says on the tin' by representing the whole spectrum of Luton and embrace people from all walks of life! Not separate people by putting them into boxes. 

I could tell you about the people that walk through our door... however, I fear I would be contradicting myself! You need not know about their disabilities, mental health issues, religion, ethnic background.... or what their shoe size is and what they had for breakfast... We're not here to fill your heads with buzzwords and statistics! But one thing you must, must, must know is that we function as any healthy community would. The members build strong friendships as well as having disagreements and we share our successes and achievements as well as our downfalls. Most of all, we put our blood, sweat and tears into our music! 


First Note's Showcase in Sept 2012

The Formation of the Committee


It goes without saying that sometimes we may think we know what people want... BUT it's always better when they tell us what they need. Therefore, First Note needed a fair voice to represent them. That is when the committee was formed and a constitution agreed upon. The First Note committee is made up of it's members and to enable people to fully understand the responsibilities of running a community group, they have a co-worker that is there to assist them should they need to call upon them.

Activites


First Note cover a lot of bases concerning different ranges and styles of music. In the past we've had the pleasures of experiencing both Indian and African drumming as well as working with a professional mainstream drummer. 

The members of First Note write their own songs, take part in open 'jams' and improvise to different styles of music, they sing pre-composed songs (everyone has a favourite) and perform at local events. There doesn't seem to be another community music group, with such diverse abilities, that quite do it the way First Note does! 

We're very lucky to have access to a wide range of instruments and technical equipment - we could be a three piece band or an orchestra! - we most definitely have something to suit everyone. 

Support from Local Organisations


First Note has received copious amounts of support and wouldn't be possible without it! We're very grateful for all the help we have received and continue to receive from the local authority, local charities, organisations and individuals. We're also grateful for the extra hard work put in by the Management Committee in order to run the group, their time is invaluable.  

We've had a lot of support, but one very important donation of £3,000 from local charity, Access to Everything (now dissolved), meant that First Note could purchase very much needed equipment. This has been a very significant donation and continues First Note's success and self-sustainability. 


Useful Links:


For more info on First Note, please visit our website, like or follow us!

www.firstnotemusic.org.uk

www.twitter.com/FirstNoteLuton

www.facebook.com/FirstNoteLuton 


Thank you for reading.